I skipped today’s dose. I’m still a little winded and anxious but getting a bit better. I still have a lot of fatigue too, but I think I’ve finally stopped suffocating in my sleep. That doesn’t mean I’m free from nasal issues or sleep apnea, but at least the medication side effects are slowly being eliminated—unless it’s connected to something else entirely that I don’t know about. I’m definitely going to have a lot of questions for Rhonda! It’s just so frustrating because, as it is, we can’t get started on anything for a month while we wait for the new insurance.

Tom was going to call my pulmonologist today because I had to sleep, but then he found out that this doctor doesn’t accept the plan we want to go with. It would be nice if we could get into the ENT and find out exactly what’s going on with my nose before getting me back on a CPAP since my nose will determine what type of mask would be best. More than likely, it’ll be a full-face mask.

If I could just get my nose and energy back, I could live life again, be more active, and not need to take breaks between simple everyday tasks that most people take for granted. That would be awesome. We still hope to move one of these years soon enough and have fun picking out a new place and getting new stuff for it. But you kind of need energy for that kind of thing, you know?

Sooner or later, something can be done about my nose but the thought of possibly spending the rest of my life tired no matter what I do makes me want to scream. But we can’t rule out chronic fatigue until I get set up on a CPAP again and get used to it.

I just hope I’m not dreaming when I think of eventually becoming happier and healthier. I still have some shoulder and stomach pain, but hopefully, that won’t amount to anything serious.

Not everyone may care for AI, but I sure love it and find it so helpful. So I decided it would be a good idea to create a spreadsheet for a daily body scan. I like to visualize things and see if I can spot any patterns that might help me improve. So, I asked AI to make me a spreadsheet with all the body parts. I put a checkmark next to each part that’s an issue that day and elaborate in the notes column. First, it made one for Excel, but I prefer Google Sheets, so I had it create the same thing there. It’s a great way to keep track of things.

I’m also tracking the intensity of my fatigue and negative emotions on an app I have. Plus, I keep a chart of every medication I remember taking (and will take in the future) along with their side effects.

No liver results yet even though I don’t expect any problems there.