Monday, June 5, 2023

Another exhausting day. Woke up 4 or 5 hours into my sleep and had a little trouble getting back to sleep. Then I got up after sleeping just 6 hours because I had to pee. When I couldn’t get back to sleep I got up for an hour but was still so tired that I went back to sleep for a couple of hours.

This is just ridiculous. I barely made it to the store. I had to lie down when we got back because it took the wind out of me so much. When I got enough energy, we went to the pool for a quick dip. It was fun even though I again had the wind knocked out of me.

Just did 8 miles on the road and my energy is depleted even more.

It’ll be 50 days before I see the pulmonologist. This seems so far away. It’s looking more and more like it could be sleep apnea. I not only have so many symptoms but it’s been worse the last 4-5 days, and according to Fitbit, I had more spikes in blood oxygen saturation.

The thought of having to sleep with a hose stuck to my face doesn’t sit well with me but I would be willing to do just about anything at this point if it’s going to help me and bring my energy back. I miss the days when my worst problems were toothaches and TMJ!

If this isn’t sleep apnea, it could be my heart but that one’s harder to believe. I just had an EKG and it’s hard to believe the doctors wouldn’t have picked up something from that or during surgery.

Not much in the way of lower stomach pain today so that’s good. Sure have been having issues with my left shoulder, though. I wish that was my only problem!

Maybe I really have beaten most of the anxiety because I always did say that as soon as I did there would just be something else. Just like if I ever find out what’s going on with me and hopefully get it resolved there will be something else. It’s one thing after another. I haven’t had a break in 9 years so I don’t expect to start anytime soon. I really fear and believe I’m going to struggle with ongoing health issues for the rest of my life.

Andy said he usually sleeps straight through and every once in a while, he’ll wake up to pee. He said that if I do, I may be tempted not to put the mask back on being sleepy and all that but that when I wake up I may regret that I didn’t. That makes sense but I can also see how it would be a pain in the ass to deal with when you’re half asleep and you just want to get back to sleep.

I wash my hair every other day and am going to try to make a point of hitting the pool before I plan to wash it even if it means swimming to a soundscape of one plane after another. Hell, there were just seconds between planes. Forget about minutes.

We exchanged helloes with a couple that was there that I’d seen in the park group. The lady later “liked” the rat pictures I decided to share after all, curious to see how many reactions/comments it would generate. Because my memory isn’t what it used to be and there are so many people I’ve talked to in the group, I couldn’t help but wonder if she was one of the ones that were rude to me at some point but I’m guessing we haven’t had any problems or else she wouldn’t have “liked” the rat.

Interestingly enough, he got a text message saying there was a water main leak and the water would be off but we never even noticed.

Anyway, other things that could cause fatigue according to my research are various cancers but I don’t have the weight loss and chronic cough that typically goes with that so that’s my last guess.

I’m down a few pounds since cutting portions and having less meat. Now that I know just how potent levothyroxine is, I suspect it isn’t that my thyroid died off more after we moved here but that my TSH probably rose because I gained weight. The TSH adjusts up and down when we lose or gain weight. I just didn’t realize it only took a few pounds to affect it. I thought it would take about 20 pounds.

Tinkerbella now takes food from us but continues to be on the shy side.

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