Tuesday, June 17, 2025

Trying not to get too ahead of myself, but I'm feeling that spark of hope once again that I just may get my life back and that I don't have chronic fatigue on top of sleep apnea after all. Yesterday and the day before, I did have a little fatigue, but not epic, off-the-charts, debilitating fatigue. Can't say whether or not the maca helps, but I was still able to do the things I normally do. Today I'm a little better, and it was the third time in four days that I was able to sleep without leaks.

Therefore, we decided we would get me a cradle along with a full-face mask with a liner, so I have a good variety. The hybrid is not a good option, and besides, we now know that the nasal pillows that go just inside the nostrils won't last long anyway.

Here's the interesting thing—my schedule has been slowing down in that it's not rolling as fast. When the fatigue was really bad, I was having huge jumps, and then I would hold, and then I would jump again big time, and back and forth. Now it seems to be doing a slow and consistent jump, sometimes holding or even backing up a bit. My schedule has backed up 5 hours since I originally scheduled my appointment with Rhonda, so I have to really make sure that I hit my stay-up targets. Today I can't let myself crash before 9:45 AM. I want to stay up an hour and 15 minutes later each day until the appointment on Monday. If I don't, then Monday is going to be a hell of a long day because the appointment is at 2. When I first scheduled it, the scheduling program was saying I would get up at 8:00 AM. Now it's saying I'm getting up at 3:00 AM. So I definitely can't afford to have it slip back any more if I can help it. A long day with better energy, however, would be a lot more doable than a long day where I'm absolutely batshit exhausted.

Tom says it makes sense, though, because when I was really exhausted, I was forced to lie around a lot, which would make me stay up longer in the end and also sleep a bit longer. Now I'm still sleeping the typical 7 or 8 hours I normally sleep, but I'm not staying up as long. Yesterday, I was out after 15 hours when I was hoping to stay up another hour or two. But now that I have more energy, I'm a little more active, and therefore I'm not up as long. In time, I might be, but it can take a good six months or so after starting treatment at the beginning of May for my body to really settle in. Paying off a five-year sleep debt isn't something you do in a few weeks or even a few months. 

Strange how it's those little things that can turn out to be a big deal. When I first started having the fatigue, I thought it was tied into menopause and would pass as I settled in, just like I thought that little stomach cramp was just a pocket of trapped gas, not knowing it was actually a dying gallbladder.

I just hope the storms don't throw anything off! They're unpredictable. Many times they say it's going to storm and it doesn't, and then there are times when no storms are predicted, yet we get hit with them. I swear I heard the mowers just after I fell asleep, but I fell back to sleep a second later. Really hope they don't get in the habit of using the loud one too often!

Tried to get back into my creative writing and pick up my blackmail story with Nane in it, but I just couldn't get into it. I just can't motivate myself to be the type of creative writer I used to be.

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