Saturday, December 27, 2025

 Got the set of 16 candles, and I'm definitely disappointed. I can't smell a thing. They smelled great when I sniffed them before I lit them, and one of them I can smell really well if I stick my nose over its flame, but I think maybe they're just too small to really have much of a throw. Either that or the quality and strength of the oils aren't good.

Okay, I moved a couple onto my warmers to see if that brings out the smell and yes, it helps a lot.

I have continued to be extremely exhausted and frustrated. I'm really starting to believe the end is near because I can't go on like this much longer if the doctors don't help me. I don't want to desert Tom in case he ever needed help but if I can't help myself, I'm no good to him. Besides, I'm tired of feeling tired and shitty. Every fucking time I sleep, I'm waking up multiple times a night either just because or because of breathing/CPAP issues (usually the latter), whether I take clonazepam/antihistamines or not. This is fucking ridiculous. This place is starting to make it seem like I didn't sleep all that bad at the last place after all. How is it I'm in one of the quietest places I ever lived in, and I'm sleeping the worst ever? Hell, not even the NHA was this bad, and it was plenty bad enough!

I slept OK for the first 6 hours, and then I removed the mask altogether. I realized I wasn't elevated enough on the two pillows I was using (I suspected that might not be enough), but was too tired to get up and get the large wedge pillow. Ironically enough, once I removed my mask and was lying flat, my nose was actually clearer. So then I got to thinking, what if the CPAP itself is causing some of my problems? So I did a little research and found that yes, it can do this. One of the things it recommended was a heated hose. Although I have my doubts, I'm desperate enough to try anything once, so I've got one coming today.

The surprising thing was my AHI score. I think it was the lowest ever at just 1.0! Amazing, along with my Fitbit sleep score for someone who wakes up so exhausted. Last night I got hit with whistling, snorting, hissing, and my nose clogging up. Right now, though, I think sleep disturbances may be more responsible for my fatigue than CF.

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